Comprehensive Cancer Care for Children and Their Families: Summary of a Joint Workshop by the Institute of Medicine and the...

Description

Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop.

Get the book

Amazon.com

Search the book

eBay.com

Search the book

Similar books

• 

  How Institutions are Shaping the Future of Our Children: For Better or for Worse?

  By Catherine Dulmus, Karen Sowers

  Lammert, M., & Timberlake, E. M. (1986). Termination of foster care for the older adolescent: Issues of emancipation and individuation.

• 

  Reversibility of Chronic Disease and Hypersensitivity, Volume 5: Treatment Options of Chemical Sensitivity

  By William J. Rea, Kalpana D. Patel

  Dou, L., E. Bertrand, C. Cerini, V. Faure, J. Sampol, R. Vanholder, Y. Berland, P. Brunet. ... A. Timberlake, B. Sumpio, R. Pfragner, I. M. Modlin, M. Kidd.

• 

  Rockwood and Green's Fractures in Adults

  By William Ricci, Charles M. Court-Brown, Margaret M. McQueen

  Chendrasekhar A, Moorman DW, Timberlake GA. An evaluation of the effects of ... Chittiboina P, Wylen E, Ogden A, et al. Traumatic spondylolisthesis of the ...

• 

  Breast Pathology, An Issue of Surgical Pathology Clinics

  By Laura C. Collins

  Hartmann LC, Radisky DC, Frost MH, et al. Understanding the premalignant potential of ... D'Alfonso TM, Wang K, Chiu YL, et al. Pathologic upgrade rates on ...

• 

  Telepractice in Speech-Language Pathology

  By K. Todd Houston

  Stensland, J., Speedie, S., Ideker, M., House, J., & Thompson, T. (1999). The relative cost of outpatient ... Deal, J. L. (1987). Appraisal and diagnosis of ...

• 

  Addressing Adversity: Prioritising adversity and trauma-informed care for children and young people in England.

  By Marc Bush, Lord Victor Adebowale, Rebecca Adlington

  1 2 Howard, S. and Johnson, B. (2000) Resilient and Non-resilient Behaviour in ... 4 De Haan, L., Hawley, D. and Deal, J. (2002) 'Operationalizing family ...

• 

  Culture, Brain, and Analgesia: Understanding and Managing Pain in Diverse Populations

  By Mario Incayawar, Knox H. Todd

  ... are not fluent in the language/s of the medical care provider.72 Research ... Anglo-Americans have traditionally placed a great deal of emphasis on the ...

• 

  Image-Guided Spine Interventions

  By John M. Mathis

  This practical guide thoroughly discusses both well-established and new interventions that are applied to the spine for the purpose of pain relief.

• 

  New Mynursinglab -- Access Card -- For Maternal-Child Nursing (24-Month Access)

  By Pearson Education, Pearson Education, Inc., David P Pearson Education

  Several versions of Pearson's MyLab & Mastering products exist for each title, including customized versions for individual schools, and registrations are not transferable.

• 

  Pearson's Medical Assisting (General)

  By Pearson Education Staff, Madan Dr Pearson Education

  If a picture paints a thousand words, imagine what video can do? Pearson Medical Assisting Videos help users learn the nuances and the details of many medical assisting procedures.