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Anencephaly is a rare and devastating congenital neural tube defect that affects the development of the brain and skull. Infants born with anencephaly have incomplete brain development and are missing most of their skull.
The Dysraphic States, from Syringomyelia to Anencephaly
Not long into their pregnancy, Brandon and Brittany Buell were given the heartbreaking news that their son, whom they had already named Jaxon, had a rare condition called Microhydranencephaly (meaning that he was missing part of his skull ...
Brenda Winner tells the story of her anencephalic daughter, Jarren, and how Brenda helped establish the first medical protocol in America to utilize anencephalic infants as organ donors as a tribute to her daughter's life and to help other ...
She also shares the moving stories of other donor families.
Based on a March 1987 conference, discusses criteria for determining when a child can be ethically, medically, and legally considered dead, and needed organs or tissue be transplanted to other children.
Concerned with the development of practices and attitudes to several categories of severely disabled subjects, their use as sources of tissues and organs for transplantation as well as an assessment...
Epidemiology of Anencephalus and Spina Bifida
Anencephalus, Spina Bifida and Congenital Hydrocephalus, England and Wales 1964-1972