Dying to Live: A Guide to Living with Motor Neurone Disease
- ISBN-10
- 1533183333
- ISBN-13
- 9781533183330
- Series
- Dying to Live
- Pages
- 104
- Language
- English
- Published
- 2016-05-20
- Publisher
- Createspace Independent Publishing Platform
- Author
- Kevin Jordan
Description
How much more time do I have left? I fell for the second time yesterday. Am I deteriorating more quickly than I thought? I will have to be fed. I will have to be helped on the toilet. These thoughts churn in my mind. For the first time I have a genuine fear of what is to come. I've held it together until this point, but processing all the information about the future is too much. I can't stop the tears. How much longer will I still be able to walk? To speak? To act normally? It has been nearly eight years since I was diagnosed with Motor Neurone Disease (MND). When I started writing this book four years ago, I was full of anger, anxiety, fear and frustration. I have changed. It has been a journey of self-discovery, forgiveness of myself, as well as love and acceptance of others. This is my story about living with MND. But more than that, this is a book about hope, love, spiritual fulfilment, and the lessons I've learned on this journey.
