This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.
The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care.
Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.
Amy Kuebelbeck shares how she and her husband made the decision to forgo extreme measures to save her son Gabriel after learning at five months pregnant he suffered from hypoplastic left heart syndrome and discusses how they prepared for ...
Perinatal Palliative Care: A Guide to Supporting Families when a Baby is at Risk of Dying Before Or Shortly After...
Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners.
Essay from the year 2015 in the subject Medicine - Other, grade: 94.6, The University of Texas at Dallas, language: English, abstract: Infant loss and neonatal death is a common, yet very taboo subject in the United States today.
Perinatal hospice is a novel form of care for an unborn child who has been diagnosed with a significantly life-limiting condition. In this book, Aaron D. Cobb develops a virtue-based defense of the value of perinatal hospice.
'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the ...
At present, neonatal palliative care services in Singapore include a hospital palliative care consult service which accepts ... extensive investigations for both twins, leading to great uncertainty in terms of their long-term outcome.
Beauchamp, T. L. and Childress, J. F. (2013) Principles of Biomedical Ethics. ... in Boniolo, G. and Sanchini, V. (eds) Ethical Counselling and Medical Decision-Making in the Era of Personalised Medicine: A Practice-Oriented Guide.